Skip to main content

Our MND walk!!

15.


Well my loves, what a morning!! First though I'm listening to Mike Dignam - Beautiful Tragedy, I think I have mentioned this song in a previous blog, I'm not totally sure but it's a very strong, beautiful song I love it. Why not listen to this song while reading this blog? 

I'm happy, I'm full of pride and overwhelmed with emotion to be honest. Today I took part in my first ever charity walk, I took part in the Humber Bridge MND walk. Myself, Rob, my work colleagues Sue, Audrey and Shell, Audrey's brother in law Andy, their friend Ed and Shell's daughter Keeley all got together this morning to do this walk. 

I saw on Facebook that this event was happening around 2/3 weeks ago and automatically decided I needed to do it and when I shared the event to my friends I never expected anyone to want to join me, so for my work friends and their family members to want to do this with us really made me happy. I never knew what to expect or what to do but I'm so glad that I never backed out of doing it.

When we got to the car park (we all arrived at different times) we got ourselves registered and received a little goody bag of biscuits and a MND t-shirt (I had to find a way of changing my top with no one seeing my wobbly bits, how embarrassing!!) the top may have been a tad snug but I wore it with immense PRIDE. My friends bought a balloon for us to release for my dad which we wrote a little note on. I was a bit shocked at how I felt when I saw a couple of people there in wheelchairs with equipment to help them breathe, I found myself feeling very emotional and sad for two reasons 1, because they are fighting this awful disease and don't deserve too and 2, because my dad hasn't got to that stage yet and it was a glimpse into what the future may bring for my dad. That's quite hard to realise sometimes. 




There we all are just before we set off :)

There were so many people it was amazing! I even met two lovely girlies who I have as friends on Facebook, if you are reading this, I'm sorry we didn't manage to have a chat, hopefully one day we can. 

I thought I would be quite puffed out and knackered doing the walk because it's quite a long way from one side to the other and then back again and I'm certainly not the most fittest or active person in the world but having great chit chat and laughter really made the time fly by (my legs are very tired now though) and the view from the Humber Bridge is pretty amazing. 

My dad wanted to join us on the walk today but I thought it was a little too far for him to walk and there was some time waiting around which I know he wouldn't have liked. I think as time is passing by his legs are now getting more affected, which I knew would always be a possibility but I've always hoped it wouldn't affect his legs, time will tell...




I loved that so many people got together to do this walk, all strangers but all connected. Lets all do this again next year :) 

Thank you friends for joining me today, not only to raise more awareness but for being a strong support network for me during this hard time in my life. I'm just about holding it together because of all of you and I thank you for that.

Much love
Beth xx

p.s to leave a comment select the name/URL option in the drop down. 








Comments

  1. Beautiful as always Beth.
    I feel privileged to have you call me your friend xxxxx

    ReplyDelete
  2. Hey, I follow you from blog lovin. and have decided to nominate you to the liebster award. Please check out my blog for more information. I shall stay tuned to your blog! http://rmalikreports.wordpress.com/2014/09/10/liebster-award-nomination/

    ReplyDelete

Post a Comment

Popular posts from this blog

This may upset you...

50. Hello my loves. WOW we've made it to the fiftieth blog post, if you're reading this one and you've read all of the ones before, thank you for sticking with me and my public diary entries. If you are new to my posts then Hello and welcome to my life, my little world of, well, I'm not to sure...this. I'm listening and watching Sia - Elastic Heart, I absolutely love this song and I love the video! It's so incredibly powerful , I watch it without knowing what it is that is keeping me so drawn to it (maybe Shia's body...) but seriously please go and watch it, don't read the comments of the video if it's the first time you're watching it and let me know what you believe it is portraying. I won't tell you what I believe because I don't want my view to alter what you may initially feel.      I feel like it might be a good time to update you guys on my Dad. By the way, everything I write is solely my feelings and from my point of vie

In difficulty there is strength and laughter

53. Hello my loves... This may seem like a very strange time, some may think I shouldn't write at all right now but as I'm just sat here, waiting, I feel I should (plus I've been given permission from my sister Kellie and Rob) On Wednesday 4th February, which seems like a lifetime ago, I got a phone call to say things with Dad had took a turn and we all needed to get to the home as time was looking short. I can't explain the fear that was going through me. The panic was so strong I was physically shaking until i got to the home to see him.  I had no idea what to expect, what had happened or what was going to happen, I just had to go with it. I guess we all do when faced with these extremes.  I have to admit I was pretty shocked to see that once the sedation had worn off he was back to his smiley self, even dancing along to the music.  But we knew it was serious when they said he was now completely nill by mouth, no food, no liquid.  An influx of fa

Our story with MND so far..

6.  These are my feelings and my thoughts, no one else's, just mine. In June 2013 my Dad was dealt the card of Motor Neurone Disease, a horrible disease. MND attacks the central nervous system and causes muscles to weaken and waste away. People with MND have to struggle everyday with activities that wouldn't have affected them before. It can be different with each person but sadly the outcome is always the same, there are no survivors, only true fighters! There is no cure... In some cases of MND the person can also have Frontotemporal Dementia. A less common form of dementia but nevertheless devastating. My Dad also has this... I first realised that something wasn't quite right around January 2013, my dad and I were sat in a cafe and he couldn't open a folded lottery ticket my exact words to him were "can't you use for hands or something" his reply was "no, my hand has got really weak" I asked him to make a fist with his right han